Data and Surveillance Resources

Expanding Surveillance of Adults with Intellectual Disability in the US. Center for Developmental Disabilities Evaluation and Research (CDDER)

Centers for Disease Control and Prevention. Disability and Health Data System (DHDS).

Centers for Disease Control and Prevention. (2009). U.S. Surveillance of Health of People with 

Intellectual Disabilities.

Disability Statistics Compendium Rehabilitation Research and Training Center on Disability Statistics and Demographics (StatsRRTC)

Disability and Health Data System (DHDS) Fact Sheet

The Current State of Health Care for People with Disabilities.  National Council on Disability

Health Disparities for People with Disabilities.  Disability Rights Education & Defense Fund]

Disability and Health Fact Sheet. World Health Organization (WHO)

Prevalence of Disability and Disability Type among Adults, United States – 2013

U.S. Surveillance of Health of People with Intellectual Disabilities 

Kraus, Lewis. (2015). 2015 Disability Statistics Annual Report. Durham, NH: University of New Hampshire

Uncovering the Power of Data: Disability and Health Data Systems (DHDS)

At a Glance: Conducting the 2011 Behavioral Risk Factor Surveillance System (BRFSS)

State Disability and Health Programs

Behavioral Risk Factor Surveillance System (BRFSS)

BRFSS State Coordinators

U.S. Department of Health and Human Services Implementation Guidance on Data Collection Standards for Race, Ethnicity, Sex, Primary Language, and Disability Status

Data Standards in HHS Data Collection – Greenberg 2012 National Conference on Health Statistics

Report to Congress – Improving the Identification of Health Care Disparities in Medicaid and CHIP

Health Insurance Marketplace Quality Initiatives