Resources by Topic

Action Learning

Marquardt, M., Optimizing the Power of Action Learning. 2nd Ed. Boston, Nicholas Brealey Publishing, 2011


Agency-Specific Definitions of Disability

Office of Disability Employment Policy (ODEP) – Disability Employment Policy Resource 

Social Security Administration – Disability Evaluations Under Social Security

Parent Center Hub

Disabled World – Definitions of Disability


Building Healthy Communities for Active Aging

Environmental Protection Agency (EPA) – Aging

Compendium of Community Aging Initiatives

Building Healthy Communities for Active Aging – National Recognition Program

AARP- Livable Communities

CDC – Healthy Aging


Barriers to Healthcare Access

Disability and Health – WHO

Access to Health Care Services for Persons with Disabilities: Defining the Barriers to Successful Strategies for Change

Healthy People 2020 – Access to Health Services



NARIC – What Can the Fields of Aging and Intellectual and Developmental Disabilities Learn from Each Other to Support Family Caregivers?

AAIDD – Supporting Families of People with IDD


Communication with People with Disabilities

A-Z Disability Etiquette. Independence Australia

American Psychological Association (APA).  Enhancing Your Interactions with People with Disabilities

American Psychological Association (APA). Guidelines for Assessment of and Intervention with Persons with Disabilities.

American Psychological Association (APA).  Interacting with Our Members with Disabilities; Using Appropriate Language and Being Sensitive to Accommodation Preferences.

Disability Etiquette. Eastern Paralyzed Veterans Association

Disability Etiquette. Easter Seals

Florida Center for Inclusive Communities. Improving Communication with

Patients who have Intellectual and Developmental Disabilities

Effective Communication for Health Care Providers: A Guide to Caring for People with Disabilities

Disability Etiquette

Resource Modules on Health of People with Intellectual Disabilities

Resources for Communicating with Individuals with Disabilities

National Center on Health, Physical Activity and Disability, Inclusive Health Communication Scorecard


Cultural Competence

Definitions of Cultural Competence

American Association for Health Education

The Commonwealth Fund – Cultural Competence in Health Care: Emerging Frameworks and Practical Approaches.

Towards A Culturally Competent System of Care, Volume I. Washington, DC: Georgetown University Child Development Center, CASSP Technical Assistance Center.

Denboba, D., U.S. Department of Health and Human Services, Health Services and Resources Administration (1993). MCHB/DSCSHCN Guidance for Competitive Applications, Maternal and Child Health Improvement Projects for Children with Special Health Care Needs.

Lavizzo-Mourey, R. & Mackenzie, E. (1996). “Cultural Competence: Essential Measurement of Quality for Managed Care Organizations.” Annals of Internal Medicine, 124, 919-926.

A Primer for Cultural Proficiency: Towards Quality Health Care Services for Hispanics

National Medical Association Cultural Competence Primer

Developing Culturally Competent Programs for Families of Children with Special Needs (monograph and workbook)

Taylor, T., et al. (1998). Training and Technical Assistance Manual for Culturally Competent Services and Systems: Implications for Children with Special Health Care Needs. National Center for Cultural Competence, Georgetown University Child Development Center.

Tervalon, M. & Murray-Garcia, J. (1998). “Cultural Humility versus Cultural Competence: a Critical Discussion in Defining Physician Training Outcomes in Multicultural Education.” Journal of Health Care for the Poor and Underserved, 9 (2) 117-125.

U.S. Department of Health and Human Services, Administration for Children and Families, Administration on Development Disabilities (2000). Amendments to P.L. 106-402 – The Developmental Disabilities Assistance and Bill of Rights Act of 2000.

U.S. Department of Health and Human Services, Health Resources and Services Administration, Bureau of Health Professions

Maternal and Child Health Services Title V Block Grant Program

National Standards for Culturally and Linguistically Appropriate Services in Health Care: Final Report

U.S. Department of Health and Human Services, Substance Abuse and Mental Health Services Administration, Center for Mental Services


Data and Surveillance

Expanding Surveillance of Adults with Intellectual Disability in the US. Center for Developmental Disabilities Evaluation and Research (CDDER)

Centers for Disease Control and Prevention. Disability and Health Data System (DHDS).

Centers for Disease Control and Prevention. (2009). U.S. Surveillance of Health of People with 

Intellectual Disabilities.

Disability Statistics Compendium Rehabilitation Research and Training Center on Disability Statistics and Demographics (StatsRRTC)

Disability and Health Data System (DHDS) Fact Sheet

The Current State of Health Care for People with Disabilities.  National Council on Disability

Health Disparities for People with Disabilities.  Disability Rights Education & Defense Fund]

Disability and Health Fact Sheet. World Health Organization (WHO)

Prevalence of Disability and Disability Type among Adults, United States – 2013

U.S. Surveillance of Health of People with Intellectual Disabilities 

Kraus, Lewis. (2015). 2015 Disability Statistics Annual Report. Durham, NH: University of New Hampshire

Uncovering the Power of Data: Disability and Health Data Systems (DHDS)

At a Glance: Conducting the 2011 Behavioral Risk Factor Surveillance System (BRFSS)

State Disability and Health Programs

Behavioral Risk Factor Surveillance System (BRFSS)

BRFSS State Coordinators

U.S. Department of Health and Human Services Implementation Guidance on Data Collection Standards for Race, Ethnicity, Sex, Primary Language, and Disability Status

Data Standards in HHS Data Collection – Greenberg 2012 National Conference on Health Statistics

Report to Congress – Improving the Identification of Health Care Disparities in Medicaid and CHIP

Health Insurance Marketplace Quality Initiatives


Disability Definitions

WHO – Disabilities

Disabled World – Disability

Stanford – Disability: Definitions and Models

Social Security Administration – Disability Planner


Disability Costs

Cost as a Barrier to Care for People with Disabilities NCBDDD Fact Sheet

Disability & Socioeconomic Status Fact Sheet.

MarketWatch: Illness and Injury as Contributors to Bankruptcy


Disability and Health

Health and Disability Digest. AUCD

Key Findings: Development of a Community Health Inclusion Index: An Evaluation Tool for Improving Inclusion of People with Disabilities in Community Health Initiatives

Community Health Inclusion Index (CHII.) The National Center on Health, Physical Activity and Disability

Health, United States, 2015 – Disability

NACCHO Health and Disability

Public Health is for Everyone Tool Kit

Disability and Health Journal

CDC – Disability and Health

Healthy People 2020 – Disability and Health

WHO – Disability and Health

Disability Models

Definitions of the Models of Disability

Defining Disability Today

Models of Disability: Implications for Practice

Disability: Definitions, Models, Experience

Disability 6.1.1 The four models

Towards a Common Language for Functioning, Disability, and Health – ICF

ICF Checklist

Emergency Preparedness

American National Standards Institute (ANSI) Homeland Security Standards Panel.  Final Workshop Report Emergency Preparedness for Persons with Disabilities and Special Needs

ANSI Homeland Defense and Security Standardization Collaborative (HDSSC)

Association of Schools of Public Health (ASPH).  Public Health Preparedness and Response Core Competency Model

Federal Emergency Management Agency (FEMA). Guidance on Planning for Integration of Functional Needs Support Services in General Population Shelters.

Ready Now! Toolkit for Emergency Preparedness for People with Disabilities

Illinois Emergency Management Agency.  Emergency Preparedness Tips for Those with Access and Functional Needs

Red Cross Action Checklist for People with Disabilities

Tips for First Responders.  Center for Development and Disability

Ready Now! Toolkit for Emergency Preparedness for People with Disabilities (Revised, 2014)


Family Centered and Patient Centered Care

Institute for Patient- and Family-Centered Care

Institute For Patient- and Family-Centered Care Core Concepts

Strategies for Leadership: Patient- and Family-Centered Care

Institute for Healthcare Improvement

Patient- and Family-Centered Care and the Pediatrician’s Role

Family-Centered Care: Current Applications and Future Directions in Pediatric Health Care

Definitions of Cultural Competence


Health Care

Access to Medical Care for Individuals with Disabilities. US Department of Justice, Civil Rights Division

The National Center on Health, Physical Activity and Disability Physician’s Tool Kit


Health Literacy

Health Literacy and People with Disabilities

NCHHSTP Social Determinants of Health Definitions

Learn About Health Literacy

Quick Guide to Health Literacy

Health Literacy – HRSA

Health Literacy: A Prescription to End Confusion

Tell Others about Health Literacy


Health Promotion

Disparities in Cigarette Smoking among Adults with Disabilities

Disability and Health. Healthy People 2020

Guidelines and Criteria for the Implementation of Community-Based Health Promotion Programs for Individuals with Disabilities. American Journal of Health Promotion: Vol 24, No.2

Impact of Poor Oral Health Care on Overall Health, Especially Among Adults With

Disability. Illinois Department of Public Health

Kansas Research and Training Center on Independent Living (RTCIL). Health care Access for Persons with Disabilities, a Continuing Education Course for Physicians, Nurses, Social Workers, Other Health care Professionals and Medical Office Staff.

Women with Disabilities and Breast Cancer Screening

Oral Health and People with Disabilities NCBDDD Fact Sheet

Public Health is for Everyone Toolkit. Association of University Centers on Disabilities (AUCD)

Screening Saves Lives: Breast Health Screening the Right to Know

U.S. Department of Justice (2010). Access to Medical Care for Individuals with Mobility Disabilities

WHO Global Disability Action Plan 2014-2021: Better health for all people with disability

North Carolina’s Plan to Promote the Health of People with Disabilities

Frieden TR. Foreword. MMWR Suppl 2016; 65place_Holder_For_Early_Release

Obesity and People with Disabilities NCBDDD Fact Sheet

Physical Inactivity and People with Disabilities NCBDDD Fact Sheet

How I Walk Inclusive Walking Campaign Materials. NCHPAD

Inclusive Healthy Communities Implementation Package (iCHIP)



Priced Out: The Housing Crisis for People with Disabilities (2010)

Housing Issues for People with Disabilities – The Arc

Disability Rights in Housing

Visit-Ability – Basic Access in EVERY New House

Visit-Ability Train the Trainers Webinar

Visit-Ability – Who Are We

Visit-Ability – Visibility Defined

Psychology Today – Space and Empathy

Visit-Ability – UD E-World


Intervention Evaluation

Using the Evidence Base to Support Healthy Aging

Seeking Best Practices: A Conceptual Framework for Planning and Improving Evidence-Based Practices

Healthy People 2020 Evidence-Based Clinical and Public Health Generating and Applying the Evidence

Developing an Evidence-Based Guide to Community Preventive Services—Methods

A Framework for Public Health Action: The Health Impact Pyramid


Models for Inclusive Planning and Organizational Training

Plan4Health Resource Library

Harris, A., & Enfield, S. (2013).  Disability, Equality and Human Rights: A Training Manual for Development and Humanitarian Organisations. Oxfam International

Public Health Partnerships Can Increase State Disability Capacity for Healthcare and Health Promotion (OR UCEDD)

Inclusion Made Easy: A Quick Program Guide to Disability in Development. CBM

Best Practices for Including Individuals with Disabilities in all Aspects of Development Efforts

United Nations

Including People with Disabilities in Emergency Planning: How Are We Doing?

Involving People with Disabilities as Members of Advisory Groups

Community Health Inclusion Sustainability Planning Guide. The National Center on Health, Physical Activity and Disability (NCHPAD)

Effectively Including People with Disabilities in Policy and Advisory Groups

Major Hazards and People with Disabilities. Their Involvement in Disaster Preparedness and Response

Why and How to Include People with Disabilities in Your Emergency Planning Process

Strategies to Incorporate the Voices of People with Significant Disabilities in UCEDD Information Gathering and Operations. AUCD

Eisenbereg, Y. et al.  (2015).  Development of a Community Health Inclusion Index: An Evaluation Tool for Improving Inclusion of People with Disabilities in Community Health Initiatives.  BMC Public Health, 15(1050)

Physical Activity and Obesity

Obesity and People with Disabilities NCBDDD Fact Sheet

Physical Inactivity and People with Disabilities NCBDDD Fact Sheet

Physical Activity & Obesity Resources from the National Center on Health, Physical Activity and Disability. NCHPAD

Before and After Fitness Center Makeover. NCHPAD

Page for Public Health Professionals. NCHPAD

Discover Accessible Fitness. NCHPAD



ADA Information and Technical Assistance Center

Medicaid – Program History

A Brief History of Medicare in America

Children’s Health Insurance Program (CHIP)

CMS’ Program History

The Olmstead Decision

Toolkit II: Legal Issues – ADA, Section 504, FERPA. American Psychological Association

Implementing the Affordable Care Act: A Roadmap for People with Disabilities. National Council on Disability (NCD)

Impact – Institute on Community Integration (UCEDD) & Research and Training Center on Community Living


Preventive Screenings

Women’s Independence Through Health

Oregon Office of Disability and Health – The Right to Know Campaign

CDC –Disability and Health


Reflective Learning

Turner, E.: Gentle Interventions for Team Coaching-Little Things that Make a Big Difference. Fort Lauderdale, FL. Leadership in Motion (LIM), LLC, 2013.

McLean, S., Feather, J., & Butler-Jones, D.: Building Health Promotion Capacity-Action for Learning, Learning from Action. Vancouver, BC, UBC Press, 2005.

Whitney, D., Tosten-Bloom, A., Cherney, J., & Fry, R. Appreciative Team Building-Positive Questions to Bring Out the Best of Your Team. Lincoln, iUniverse, Inc., 2004.

Cooperrider, D., & Whitney, D. Appreciative Inquiry-A Positive Revolutionary Change. San Francisco, Berrett-Koehler, 2005.

Learning through reflection: The interface of theory and practice in public health

Reflection as part of continuous professional development for public health professionals: a literature review

Social Determinants of Health

Drum, C., Krahn, G., & Bersani, Jr., H.  (2009). Disability and Public Health. Models and Approaches to Disability, 27-44.   American Public Health Association: Washington, DC.

Centers for Disease Control and Prevention (2014).   NCHHSTP Social Determinants of Health.

Fiorati, R. C., & Elui, V. M. C. (2015). Social determinants of health, inequality and social inclusion among people with disabilities. Revista Latino-Americana de Enfermagem23(2), 329–336.

U.S. Department of Health and Human Services. (2010). Healthy people 2020



Six Core Elements of Health Care Transition.  Got Transition? National Health Care Transition Center

Transition to Adulthood: Guidelines for Individuals with Autism Spectrum Disorders. Ohio Center for Autism and Low Incidence.

Leadership Education in Neurodevelopmental and Related Disabilities (LEND): Training Our Future Leaders in the Maternal and Child Health Field. February 2012.  Association of University Centers on Disabilities

Transition Planning for Students with Chronic Health Conditions. National Association of School Nurses


A Study of Bus Stop Accessibility: Public Health Students Working in Partnership with the Center for Independent Living

Quick Bus Stop Checklist

Toolkit for the Assessment of Bus Stop Accessibility and Safety

Institute of Medicine (U.S.) Committee on Disability in America; Field M.J., Jette A.M., editors. The Future of Disability in America. Washington (DC): National Academies Press (US); 2007. G, Transportation Patterns and Problems of People with Disabilities


Universal Design

Kochtitzky, C. & Duncan, R. (2006). Universal Design: Community Design, Public Health, and People with Disabilities. In Morris, Mayra (Ed.), Integrating Planning and Public Health: Tools and Strategies to Create Healthy Places (51-64). Chicago, IL: American Public Health Association.

Guidelines for Use of the Principles of Universal Design.  The Center for Universal Design

What is Universal Design?

National Disability Authority – Universal Design